Thank you for visiting my blog. I wanted to create it so that all the people close to me can check in to see what happening in my treatment, and how I'm doing. This doesn't mean that I don't want to hear from you. Please feel free to call, email, text any time. But I apologize if I don't always get back to you. This new cancer journey of mine is a full time job, and I'm doing the best that I can. Please know that your thoughts and prayers mean so much to me...keep them coming! Thank you for all your help and support too...it takes a community, and you have all given us that.
With love and gratitude,
Monday, April 29, 2013
The last two months have been my most challenging yet, both physically and mentally. When I got home from Germany everything got out of control. My brain MRI did not show the results we had hoped for. There were 3 new spots, as well as a few other questionable areas. So the stereotactic radio surgery treatments I received were not keeping up with the cancer. My doctor now wanted to do whole brain radiation...how devastating and scary. I feel like this has put me in a whole new realm of reality, and it has challenged my optimism. To make things even worse, my bones started to cause serious pain and immobility. They are showing signs of progression. For the first time, I can't do the things I want to, and I really feel like a sick cancer patient. I hate that my kids must see me like this. I've now finished 10 rounds of radiation to my head, one to my shoulder, and five to my hip. There have been minimal side effects other than major fatigue. Oh, and I lost my hair again...third time bald. I've also started a new drug to treat systemically, my bones and liver. I'm on hormone treatment, plus Afinitor, which makes the hormone treatment more effective. Hoping and praying that all these treatments work, and I get another LONG period of stability. I want to thank all the people that helped out during this difficult time, driving kids, walking the dog, getting groceries, and taking me to my endless appointments. We are so grateful to have you all in our lives.