Thank you for visiting my blog. I wanted to create it so that all the people close to me can check in to see what happening in my treatment, and how I'm doing. This doesn't mean that I don't want to hear from you. Please feel free to call, email, text any time. But I apologize if I don't always get back to you. This new cancer journey of mine is a full time job, and I'm doing the best that I can. Please know that your thoughts and prayers mean so much to me...keep them coming! Thank you for all your help and support too...it takes a community, and you have all given us that.
With love and gratitude,
Tuesday, December 18, 2012
My hair is falling out like crazy! How can this be?! I'm worried that the "low-dose chemo" I had in Germany is killing my hair. I just spent $200 on it this week too! Did we ever talk about it? OMG...freaking out, and feeling like an idiot! I had the stereotactic radio surgery to the small spot on my brain. Looks like the Germany treatments didn't help with that, even though they were hopeful it would. Lets just hope it helped my liver. On the positive side, I haven't had any bone pain at all since my treatments there, and a swollen lymph node has disappeared. I'm visualizing positive scans!! The kids have 2 more days of school. I can't wait for a quiet holiday at home. Best holiday wishes to everyone. Thank you for all the prayers this past year. Love to all, xox
Sunday, December 16, 2012
Ive been home from Germany for one week now. My last treatment there went well, and was a little easier to recover from than the first. There were no streaking incidents this time! My white blood cell count is low now from the chemo, and I'm waiting to do a CT soon, so I'm not getting any treatment for now. The Germany doctors want me on hormone treatment, but my doctor here won't give it to me if I'm still getting chemo. So things are still up in the air. Unfortunately, I also have to go tomorrow for another radiation treatment to my brain. And then I'd like to forget about it all for the holidays, and just enjoy the time with my family. I probably won't have much energy to execute all the usual Christmas activities, but we can still hang out and enjoy a few pajama days! Our time together is the most important thing after all. As a final note, I would like to say thank you to so many people that helped make things happen at home without me. This included all the driving, groceries, dinners, play dates, and putting out a few fires! Thank you to all our incredible friends and family. You helped make this trip possible, and gave me such comfort to know that things were taken care of.
Sunday, December 2, 2012
Today is Sunday, and I'm preparing for my final round of hyperthermia tomorrow, and my last week here in Germany. The task this week will be to recover quickly so that I can travel home well, and to establish a regimen for when I get there. I've recently learned about a doctor in Frankfurt that may have a special treatment for my liver, that some people have had huge success with. So I need to look into that too. There will most likely be another trip to Germany in the not so distant future. I feel very optimistic that I've found some great treatment options here. I want to share a funny story...after my first hyperthermia, I seemed to be having a hard time coming out of the sedation. My memory of the first night is very spotty. But the doctors laughed when they told me that I climbed out of my bed (with the side rail up), gathered my catheter very neatly and hooked it onto my IV pole, and went into the hallway to call for someone. What they didn't tell me was that I was butt-naked! I realized afterwards as I was telling the story, that I didn't even put on a hospital gown until much later that night when I was more lucid. No wonder they were laughing when they told me! I've had a few surprise phone calls this week. Thank you SO much. It was great to hear from you. Xoxox